Surrogate decision-making and related issues.

Full Abstract

This article discusses the role of surrogate decision-makers for persons who are cognitively impaired and cannot give informed consent. Questions raised follow. Is surrogate consent in research analogous to proxy consent in health care? What are some issues in surrogate consent? How does the risk-benefit ratio affect the consent process? What are the investigator's responsibilities regarding surrogate consent? Issues discussed include advance directives, durable power of attorney, legally authorized representatives, substituted judgment, double informed consent, responsibilities of surrogates, and barriers to informed consent. The article ends with recommendations to clarify state and national laws, change research designs, and establish a national mechanism for reviewing promising research that is usually prohibited.

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Author information

Author/s: Beck, Cornelia (C); Shue, Valorie (V);

Affiliation: Department of Geriatrics, University of Arkansas for Medical Sciences, Little Rock, Arkansas 72205, USA.

Journal and publication information

Publication Type: Journal Article

Journal: Alzheimer disease and associated disorders (Alzheimer Dis Assoc Disord), published in United States. (Language: eng)

Reference: -2003 Apr-Jun; vol 17 Suppl 1 (issue ) : pp S12-6

Dates: Created 2003/06/18; Completed 2003/08/05; Revised 2007/11/15;

PMID: 12813219, status: MEDLINE (last retrieval date: 11/6/2008)

Sourced from the National Library of Medicine. Abstract text and other information may be subject to copyright.

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MeSH headings (categories)

This article was linked to the MESH Headings shown below.

Advance Directives
Alzheimer Disease - psychology
Clinical Trials as Topic
Decision Making
Humans

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