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Research article summary:
Promoting a good death for persons with dementia in nursing facilities: family caregivers perspectives.
Abstract Extract:
The experience of dying from Alzheimers disease (AD) in a nursing home setting is a poorly understood phenomenon. Fifty-seven family member caregivers of persons with Alzheimers disease, who had died as a resident in a national nursing home chain, ... (Full abstract text below) Published 2003Jun
in Journal: JONAS Healthc Law Ethics Regul
(Language : eng)
Full Pubmed Extract
This information was retrieved, real-time, on your behalf from the public area of the Pubmed website:
1. JONAS Healthc Law Ethics Regul.
2003 Jun;5(2):34-41
Promoting a good death for persons with dementia in nursing facilities: family caregivers' perspectives.
Bosek MS, Lowry E, Lindeman DA, Burck JR, Gwyther LP
Department of Adult Health Nursing, Rush University, Chicago, IL 60612, USA. Marcia_D_Bosek@rush.edu
The experience of dying from Alzheimer's disease (AD) in a nursing home setting is a poorly understood phenomenon. Fifty-seven family member caregivers of persons with Alzheimer's disease, who had died as a resident in a national nursing home chain, participated in a structured telephone interview. Despite the belief that their loved one had died with dignity, 16 out of 57 (28%) family member caregivers believed that their loved one had not experienced a good death. This article reviews the definition of a good death and the six themes of a good death found in the literature: pain and symptom management; clear decision making; preparation for death; completion; contributing to others; and affirmation of the whole person. Five standards for evaluating the quality of an anticipated death are discussed in relation to the experiences of the persons with AD. Finally, recommendations for how nurse administrators and other members of the healthcare team can promote a positive death experience for a person with AD are proposed.
PMID : 12789031 [PubMed - Indexed for MEDLINE]
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Full Author Information
| First Name | LastName | Initials |
| Marcia Sue DeWolf | Bosek | MS |
| Elinar | Lowry | E |
| David A | Lindeman | DA |
| J Russell | Burck | JR |
| Lisa P | Gwyther | LP |
Affiliation: Department of Adult Health Nursing, Rush University, Chicago, IL 60612, USA. Marcia_D_Bosek@rush.edu
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MESH categories and related page links
This article was linked to the MESH categories shown on the left below. The links on the right are related Memletics pages.
Category links from this article:- Aged
- Alzheimer Disease - nursing
- Attitude to Death
- Caregivers - psychology
- Cause of Death
- Decision Making
- Family - psychology
- Female
- Holistic Health
- Humans
- Male
- Needs Assessment - organization & administration
- Nursing Homes - standards
- Qualitative Research
- Quality of Health Care
- Questionnaires
- Terminal Care - standards
- Total Quality Management - organization & administration
- United States
| | Related Memletics topics: |
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