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| Research article summary (published 30 Mar 2003): |
"What are they going to do with the information?" Latino/Latina and African American perspectives on the Human Genome Project.
Full Abstract
New developments in genetic science raise questions regarding their application and implications. Dialogue about these questions has not often included the perspectives of the general population and, in particular, the voices of labeled racial or ethnic groups. In this article, the authors present results from an analysis of data from focus group discussions that engaged African Americans and Latinos/Latinas in a discussion of genetic research and technology. In particular, the authors focus on questions of inequality that arose in those focus groups and their implications for public health professionals interested in addressing pervasive racial disparities in health. In addition, they present strategies for achieving a more equitable distribution of risks and benefits from genetic research and technology suggested by participants in these focus groups.
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Author information
Author/s: Schulz, Amy (A); Caldwell, Cleopatra (C); Foster, Sarah (S);
Affiliation: Department of Health Behavior and Health Education, University of Michigan School of Public Health, Ann Arbor 48109-2029, USA. ajschulz@umich.edu
Grants: R01 HG01005 (Agency:United States NHGRI)
Journal and publication information
Publication Type: Journal Article; Research Support, U.S. Gov't, P.H.S.
Journal: Health education & behavior : the official publication of the Society for Public Health Education (Health Educ Behav), published in United States. (Language: eng)
Reference: 2003-Apr; vol 30 (issue 2) : pp 151-69
Dates: Created 2003/04/15; Completed 2003/08/14; Revised 2007/11/14;
PMID: 12693521, status: MEDLINE (last retrieval date: 11/6/2008)
Sourced from the National Library of Medicine. Abstract text and other information may be subject to copyright.
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